Start: October 21, 2020
End: August 2024
Enrollment: 248
Advance care planning allows people to communicate their preferences about the medical care they receive at the end of life. This study will test the effectiveness of a program called Sharing Healthcare Wishes in Primary Care (SHARE) in improving the advance care planning process and communication among a patient, doctors, and caregivers. Participants with cognitive impairment and a family member or friend will be randomly assigned to receive either the SHARE program or enhanced care with print educational materials. Over two years, participants will complete surveys and telephone interviews about their experiences. The researchers will also collect information on the completion of advance directives.
Minimum Age: 80 Years
Maximum Age: N/A
Participant with cognitive impairment:
Family or friend of the person with cognitive impairment:
Participant with cognitive impairment:
Family or friend of the person with cognitive impairment:
Contact study personnel listed either under the general study contact or the location nearest you.
Contact NIA’s Alzheimer’s and related Dementias Education and Referral (ADEAR) Center at 800-438-4380 or email ADEAR.
Lead: Johns Hopkins University
Collaborator Sponsor
Source: ClinicalTrials.gov ID: NCT04593472