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Early-Stage Partners in Care for Memory Loss and Dementia (EPIC)

Start: October 9, 2017
End: May 2022
Enrollment: 320

What Is This Study About?

This study will test an education and skills-based training program for people with early-stage memory loss or dementia and their care partners. The training is designed to reduce stress and distress and increase well-being and quality of life through six group sessions (2.5 hours each), one individualized session (90-minutes), and four booster sessions to reinforce the skills and lessons. Additionally, researchers will interview participants in five, two-hour confidential sessions over a one-year period to gather information about background, mood, and quality of life. A comparison group will first participate in a 75-minute educational session on memory loss and dementia and related community services, followed by a check-in call after about three months. After completing an assessment, the comparison group will also receive the full program. Due to the COVID-19 pandemic, online participation for this study is available.

Do I Qualify To Participate in This Study?

Minimum Age: 18 Years

Maximum Age: N/A

Must have:

All Participants:

  • Speak, read, and write English or Spanish
  • Reside in a community setting (rather than long-term care facility, for example)

Caregivers:

  • Spouse, adult-child, and other close friend or family member
  • Self-identify as the person who currently has or who expects to have the most hands-on responsibility and ongoing involvement with the person with early-stage memory loss or dementia
  • Live with or have regular contact with the person with early-stage memory loss or dementia

Participants with Memory Loss or Dementia:

  • Confirmed diagnosis or symptoms of early-stage dementia
  • Changes in memory as measured by the AD8 dementia screening tool
  • Mini-Mental State Examination score within a certain range
  • Have an unpaid caregiver who has or will have primary responsibility for providing assistance

Must NOT have:

Participants with Memory Loss or Dementia:

  • Denying or not reporting any trouble with memory, based on self-report
  • Severe mental illness or developmental disability before the age of 45
  • Memory problems due to past head injury
 
Study Contact
Marielysse Cortes

Need Help?

Contact NIA’s Alzheimer’s and related Dementias Education and Referral (ADEAR) Center at 800-438-4380 or email ADEAR.

Where Is This Study Located?

Arizona
Arizona & Nevada Program Locations (Based at ASU Edson College of Nursing and Health Innovation)
Phoenix, AZ 85004
Recruiting
Marielysse Cortes, MSW

Who Sponsors This Study?

Lead: Arizona State University

Source: ClinicalTrials.gov ID: NCT03144921