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Early-Stage Partners in Care for Memory Loss and Dementia (EPIC)

Start: October 9, 2017
End: May 2022
Enrollment: 320

What Is This Study About?

This study will test an education and skills-based training program for people with early-stage memory loss or dementia and their care partners. The training is designed to reduce stress and distress and increase well-being and quality of life through six group sessions (2.5 hours each), one individualized session (90-minutes), and four booster sessions to reinforce the skills and lessons. Additionally, researchers will interview participants in five, two-hour confidential sessions over a one-year period to gather information about background, mood, and quality of life. A comparison group will first participate in a 75-minute educational session on memory loss and dementia and related community services, followed by a check-in call after about three months. After completing an assessment, the comparison group will also receive the full program. Due to the COVID-19 pandemic, online participation for this study is available.

Do I Qualify To Participate in This Study?

Minimum Age: 18 Years

Maximum Age: N/A

Must have:

All Participants:

  • Speak, read, and write English or Spanish
  • Reside in a community setting (rather than long-term care facility, for example)

Caregivers:

  • Spouse, adult-child, and other close friend or family member
  • Self-identify as the person who currently has or who expects to have the most hands-on responsibility and ongoing involvement with the person with early-stage memory loss or dementia
  • Live with or have regular contact with the person with early-stage memory loss or dementia

Participants with Memory Loss or Dementia:

  • Confirmed diagnosis or symptoms of early-stage dementia
  • Changes in memory as measured by the AD8 dementia screening tool
  • Mini-Mental State Examination score within a certain range
  • Have an unpaid caregiver who has or will have primary responsibility for providing assistance

Must NOT have:

Participants with Memory Loss or Dementia:

  • Denying or not reporting any trouble with memory, based on self-report
  • Severe mental illness or developmental disability before the age of 45
  • Memory problems due to past head injury

If I Qualify, Who Do I Contact?

Contact study personnel listed either under the general study contact or the location nearest you.

 
Study Contact
Coon Research Team
Marielysse Cortes, MSW

Need Help?

Contact NIA’s Alzheimer’s and related Dementias Education and Referral (ADEAR) Center at 800-438-4380 or email ADEAR.

Where Is This Study Located?

Arizona
Arizona & Nevada Program Locations (Based at ASU Edson College of Nursing and Health Innovation)
Phoenix, AZ 85004
Recruiting
Marielysse Cortes, MSW

Who Sponsors This Study?

Lead: Arizona State University

Source: ClinicalTrials.gov ID: NCT03144921