The Frontotemporal Degeneration (FTD) Disorders Registry is an online resource and database that securely collects information and stories from people affected by FTD to advance the science and development of FTD treatments. Anyone affected by FTD can join the registry, including people with an FTD diagnosis, as well as their family members, caregivers, and friends. After joining the registry, participants will receive emails about FTD including research updates and study opportunities.
Minimum Age: 18
Maximum Age: NA
Anyone affected by FTD, including:
Contact study personnel listed either under the general study contact or the location nearest you.
Who Is the General Study Contact?
For more information and to enroll, visit the FTD Registry website or email the FTD Disorders Registry.
Contact NIA’s Alzheimer’s and related Dementias Education and Referral (ADEAR) Center at 800-438-4380 or email ADEAR.
FTD Disorders Registry (National Enrollment Online)
King of Prussia, PA 19406
Lead: Association for Frontotemporal Degeneration