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A-LIST: Patients and Families Transforming Alzheimer's Disease
Start: August 15, 2018
End: December 31, 2021
Enrollment: 10000
What Is This Study About?
The A-LIST is an online community of people with, or at risk for, Alzheimers disease, other dementias, and mild cognitive impairment, along with current and former care partners. This study is designed to increase patient and caregiver engagement in research. Participants in the A-LIST contribute patient and caregiver insights through surveys on varied topics, such as patient and caregiver preferences, patient-doctor relationships, clinical trials, caregiver health, and technology. Information is gathered using a secure system and stored in a HIPAA-compliant database.
Do I Qualify To Participate in This Study?
Minimum Age: 18 Years
Maximum Age: 100 Years
Must have:
- Resident of the United States or Canada
- Diagnosed or suspected Alzheimer's disease or releated dementia
- Diagnosed or suspected MCI
- Present or former care partner for a loved one with Alzheimer's disease
- Able to speak, read, and understand English
If I Qualify, Who Do I Contact?
Contact study personnel listed either under the general study contact or the location nearest you.
Who Is the General Study Contact?
For more information, visit the A-LIST website.
Need Help?
Contact NIA’s Alzheimer’s and related Dementias Education and Referral (ADEAR) Center at 800-438-4380 or email ADEAR.
Who Sponsors This Study?
Lead: UsAgainstAlzheimer's
Source: ClinicalTrials.gov ID: NCT04466722
An official website of the U.S. government, managed by the National Institutes on Aging at the National Institutes of Health