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Self-Care for Caregivers of People With Frontotemporal Degeneration

Start: December 14, 2020
End: November 3, 2021
Enrollment: 30

What Is This Study About?

Behavioral variant frontotemporal dementia (bvFTD) involves progressive changes in personality, behavior, emotions, and judgment. Caring for someone with bvFTD can be hard, both physically and emotionally. This study will test the effectiveness of an online health coaching program designed to reduce stress and improve self-care for caregivers of people with bvFTD. Participants will be randomly assigned to receive either the online health coaching program and health information, or only the health information. All materials will be delivered on a computer tablet. Researchers will assess caregiver stress, self-care, and well-being at the start of the study and again after one month, three months, and six months.

Do I Qualify To Participate in This Study?

Minimum Age: 18 Years

Maximum Age: N/A

Must have:

  • Family caregiver of a person diagnosed with bvFTD
  • Provides at least eight hours of care each week
  • Reports poor self-care with a Health Self-Care Neglect Scale of score 2
  • Has adequate vision and hearing
  • Speaks English

Must NOT have:

  • Current participation in another research study
  • Untreated major psychiatric illness; the use of anti-anxiety or antidepressant medicines may be acceptable 
  • Evidence of caregiver cognitive impairment based on Telephone Interview for Cognitive Status score less than 25

If I Qualify, Who Do I Contact?

Contact study personnel listed either under the general study contact or the location nearest you.


Need Help?

Contact NIA’s Alzheimer’s and related Dementias Education and Referral (ADEAR) Center at 800-438-4380 or email ADEAR.

Where Is This Study Located?

Who Sponsors This Study?

Lead: University of Pennsylvania

Source: ID: NCT04686266