Storytelling To Reduce Depression and Anxiety in Family Caregivers

What Is This Study About?

This study will test whether the Caregiver Speaks storytelling program can reduce depression, anxiety, and grief intensity in bereavement in family caregivers of people with dementia. Participants will be randomly assigned to receive either usual hospice and support care or the Caregiver Speaks intervention. Those participating in Caregiver Speaks will share photos and have discussions with one another in a private, facilitated Facebook group. Researchers will use online surveys to collect information on participant depression and anxiety symptoms from the time of study enrollment up to six months after the death of their loved one. 

Do I Qualify To Participate in This Study?

Must have:

• Family member or friend providing unpaid care to a person living with dementia who is enrolled in hospice care
• Involved in hospice care decisions for the person with dementia
• Access to a digital camera or another photo-taking device such as a cell phone
• Willing to photograph images to capture caregiving and bereavement experiences
• Access to email to complete study surveys
• Willingness to set up a Facebook social media account and join the private Facebook group

Must NOT have:

• None listed

If I Qualify, Who Do I Contact?

Contact study personnel listed either under the general study contact or the location nearest you.

 

Where Is This Study Located?

Missouri
University of Missouri Columbia, MO 65202 Recruiting Abigail Rolbiecki, PhD Rolbieckia@missouri.edu

Who Sponsors This Study?

Lead: Washington University School of Medicine

Source: ClinicalTrials.gov ID: NCT04103580