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Storytelling To Reduce Depression and Anxiety in Family Caregivers

Start: March 1, 2020
End: December 31, 2025
Enrollment: 468

What Is This Study About?

This study will test whether the Caregiver Speaks storytelling program can reduce depression, anxiety, and grief intensity in bereavement in family caregivers of people with dementia. Participants will be randomly assigned to receive either usual hospice and support care or the Caregiver Speaks intervention. Those participating in Caregiver Speaks will share photos and have discussions with one another in a private, facilitated Facebook group. Researchers will use online surveys to collect information on participant depression and anxiety symptoms from the time of study enrollment up to six months after the death of their loved one. 

Do I Qualify To Participate in This Study?

Minimum Age: 18 Years

Maximum Age: N/A

Must have:

  • Family member or friend providing unpaid care to a person living with dementia who is enrolled in hospice care
  • Involved in hospice care decisions for the person with dementia
  • Access to a digital camera or another photo-taking device such as a cell phone
  • Willing to photograph images to capture caregiving and bereavement experiences
  • Access to email to complete study surveys
  • Willingness to set up a Facebook social media account and join the private Facebook group

Must NOT have:

  • None listed

If I Qualify, Who Do I Contact?

Contact study personnel listed either under the general study contact or the location nearest you.

Study Contact
Debra Parker Oliver, PhD
Abigail Rolbeicki, PhD

Need Help?

Contact NIA’s Alzheimer’s and related Dementias Education and Referral (ADEAR) Center at 800-438-4380 or email ADEAR.

Where Is This Study Located?

University of Missouri
Columbia, MO 65202
Abigail Rolbiecki, PhD

Who Sponsors This Study?

Lead: Washington University School of Medicine

Source: ID: NCT04103580