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Stress and Coping Experiences in Families With Dementia

Start: June 30, 2019
End: November 2023
Enrollment: 50

What Is This Study About?

This observational study will collect information from people living with Alzheimer's disease or a related dementia and their family caregivers about their relationships, stress, caregiver burden, and coping strategies. Participants will complete paper and online surveys and two video phone calls to observe family interactions. In addition, participants will receive blood pressure devices to wear at home which will be worn for six-minute intervals. The information collected will help researchers develop dementia family support services.

Do I Qualify To Participate in This Study?

Minimum Age: 18 Years

Maximum Age: N/A

Must have:

Caregiving Participants:

  • Adult child of a parent with Alzheimer's disease or a related dementia
  • Providing some form of care assistance to parent with Alzheimer's disease or a related dementia

Dementia Participants:

  • Age 55 or older
  • Parent to caregiver
  • Diagnosis or symptoms of Alzheimer's disease or a related dementia

If I Qualify, Who Do I Contact?

Contact study personnel listed either under the general study contact or the location nearest you.


Need Help?

Contact NIA’s Alzheimer’s and related Dementias Education and Referral (ADEAR) Center at 800-438-4380 or email ADEAR.

Where Is This Study Located?

Who Sponsors This Study?

Lead: Yale University

Collaborator Sponsor

  • National Institute on Aging (NIA)
  • National Institutes of Health (NIH)
  • Department of Health and Human Services

Source: ID: NCT04642885