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La información sobre este estudio está en inglés.

Si necesita ayuda en español, comuníquese con el Centro de Educación y Referencias sobre la Enfermedad de Alzheimer y las Demencias Relacionadas (ADEAR, por sus siglas en inglés) por teléfono al 800-438-4380 o envíe un correo electrónico. También puede llamar o enviar un correo electrónico al contacto del estudio (en inglés) para obtener información adicional.

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Dementia Education for Older Korean Americans With Probable Dementia and Their Caregivers

Start: April 20, 2021
End: March 31, 2024
Enrollment: 288

What Is This Study About?

This study will evaluate the effectiveness of a dementia education and care navigation support program, called PLAN, to help older Korean Americans with probable dementia and their caregivers access cognitive care. PLAN consists of two components: a one-hour dementia education session, and monthly counseling calls to assist participants in making an appointment with their doctor and identifying any challenges to getting care. Participants will be randomly assigned to receive either the PLAN program or an educational brochure about dementia and a referral to their doctor. After six months, researchers will measure how many participants have received cognitive care. The researchers will also assess the caregiver's understanding of dementia, and evaluate self-efficacy, depression, quality of life, and other factors in the person with probable dementia, at the start of the study and after six months. All study materials will be available in Korean.

Do I Qualify To Participate in This Study?

Minimum Age: 18 Years

Maximum Age: N/A

Must have:

Participant With Memory Problems

  • Age 65 years or older
  • Self-identify as a first-generation Korean American
  • Moderate memory loss with Clinical Dementia Rating score of at least 1
  • Availability of caregiver to participate in the study

Caregiver

  • Age 18 years or older
  • Able to read and speak Korean
  • Live in the same household with the person with memory problems or have weekly interactions together
  • Allow the research team to review medical records for information related to dementia care

Must NOT have:

Participant With Memory Problems

  • Previous diagnosis of dementia
  • Any major psychiatric disease (e.g., schizophrenia)
  • Neurological disorders other than Alzheimer's disease that might affect cognition (e.g., stroke)
  • Use of psychotropic drugs (e.g., antidepressants, antipsychotics, benzodiazepines) or cognitive-enhancing agents (e.g., memantine and cholinesterase inhibitors)

Caregiver

  • Plan to move from the area within six months
  • Active treatment for a terminal illness or in hospice

If I Qualify, Who Do I Contact?

Contact study personnel listed either under the general study contact or the location nearest you.

 
Study Contact
Hae-Ra Han, PhD, RN

Need Help?

Contact NIA’s Alzheimer’s and related Dementias Education and Referral (ADEAR) Center at 800-438-4380 or email ADEAR.

Where Is This Study Located?

New York
Korean Community Services of Metropolitan New York
Bayside, NY 11361
Recruiting
Jee Yeon Ahn
Virginia
Korean Community Service Center of Greater Washington
Annandale, VA 22003
Recruiting
Seunghee Yeo

Who Sponsors This Study?

Lead: Johns Hopkins University

Collaborator Sponsor

  • National Institutes of Health (NIH)
  • NYU Langone Health

Source: ClinicalTrials.gov ID: NCT03909347